The Unstoppable Spirit of Steve Gleason: A Life Beyond ALS

Steve Gleason, the former New Orleans Saints player known for his iconic blocked punt, has become an even more powerful symbol of resilience since his diagnosis with ALS (amyotrophic lateral sclerosis) in 2011. This progressive neurodegenerative disease has not diminished his spirit or drive. Instead, it has fueled his remarkable journey of advocacy, innovation, and living a full life.

Current Projects and Initiatives

Gleason’s unwavering commitment to helping others living with ALS is evident in his ongoing projects and initiatives:

Team Gleason:

  • Mission: To empower people living with ALS through providing innovative technology, equipment, care, and life-changing adventures.
  • Recent Achievements: In 2023, Team Gleason fulfilled over 4,455 requests for assistance, a testament to their dedication and impact.
  • Upcoming Goals: Expanding their reach to empower even more individuals with ALS and continuing to advocate for policy changes that improve access to care and technology.

Advocacy and Awareness:

  • The Gleason Act (2015): Gleason played a pivotal role in the passage of this federal law, which ensures that eye-tracking and speech-generating devices are available to individuals with ALS.
  • Public Speaking: Gleason uses his platform to raise awareness about ALS and advocate for increased research funding.
  • “A Life Impossible”: In 2024, Gleason published his memoir, detailing his life with ALS, written entirely with eye-tracking technology.

Technological Innovation:

  • Microsoft Partnership: Gleason challenged Microsoft to develop a way for people with paralysis to control their wheelchairs using their eyes. This innovative technology is now a reality and is improving the lives of many.
  • Ongoing Research Collaborations: Gleason remains actively involved in research aimed at developing new treatments and assistive technologies for ALS.

Past Accomplishments

Gleason’s determination and advocacy have resulted in remarkable achievements:

  • Congressional Gold Medal (2019): Awarded for his contributions to ALS awareness and advocacy.
  • Arthur Ashe Courage Award (2024): Recognized for his courage and inspiration in the face of adversity.
  • Inspiring Millions: Gleason’s story has touched the lives of millions around the world, motivating them to overcome challenges and embrace life’s possibilities.

Steve Gleason’s Net Worth

Gleason’s net worth is estimated to be between $5 million and $10 million. His income comes from a variety of sources, including:

  • Book Sales: His memoir, “A Life Impossible,” is a bestseller.
  • Speaking Engagements: Gleason is a sought-after speaker, sharing his inspiring story and advocating for ALS research.
  • Team Gleason Fundraising: Donations to Team Gleason support their mission and programs.

Health Update

Living with ALS is an ongoing challenge. Gleason’s health requires constant care and the use of assistive technologies. However, his positive outlook and fighting spirit remain unwavering. His family and the Team Gleason community provide vital support.

Family Life

Gleason’s family is at the center of his world:

  • Michel Varisco (Wife): Gleason and Michel have been married since 2008.
  • Rivers and Gray (Children): The couple has two children, a son and a daughter, who have brought immense joy and purpose to Gleason’s life.

Conclusion

Steve Gleason’s life is a testament to the power of the human spirit. Despite facing the immense challenges of ALS, he has continued to live a life filled with purpose, passion, and impact. His legacy as an athlete, advocate, and inspiration will continue to resonate for years to come.

FAQs About Steve Gleason

What is Steve Gleason doing now?

Steve Gleason continues to lead Team Gleason, advocate for ALS awareness, publish his memoir, and collaborate on research initiatives.

How is Steve Gleason’s health?

Living with ALS is an ongoing challenge, but Gleason remains positive and determined. He relies on assistive technologies and the support of his family and Team Gleason.

How old is Steve Gleason?

Steve Gleason was born on March 19, 1977, making him 47 years old.

What is Steve Gleason’s net worth?

Steve Gleason’s estimated net worth is between $5 million and $10 million.

Has Steve Gleason been involved in any controversies?

Steve Gleason has not been involved in any major controversies. His focus is on his family, advocacy, and inspiring others.

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